Tuesday 29 October 2013

Learning more and more about Autism


Autism and Complex Needs Conference 2013

In October I was given the opportunity to attend the Autism and Complex Needs conference run by the National Autistic Society in Birmingham.  Learning about Autism is important to me, so that I can support all our pupils who are on the spectrum, and advise other colleagues on how best to manage certain situations, to ensure the young person receives our very best quality of care and support.

The conference opened with an excellent welcome by the Chair; Professor Barry Carpenter OBE. He focused on the issue that Autism and complex needs have not become more prevalent, but more widely acknowledged, diagnosed and understood than ever before.  Therefore as educators, we must take responsibility for not only recognising their conditions positively, but ‘navigating their routes to learning’.  We as a school can treat each pupil with the respect they deserve for their individual needs, and help them on the way to becoming great members of society without feeling ‘different’ to neurotypical young people.

This opening talk helped me understand that even though some of our pupils may have the same condition ‘on paper’ this does not mean they have the same needs when it comes to their education.  Professor Carpenter then discussed with us how important it was to not just focus on the ‘main’ diagnosis a young person receives e.g. ASD.  They could also have other conditions that are needing attention, such as ADHD, OCD, and Epilepsy.  We must not design our plan for the young person around their one condition, it must include all aspects of their requirements.  Modifying their learning plan and education will help them on the pathway to achieving what we know they can.

After a lovely cup of tea J we moved on to more in-depth Key Note speakers, and my absolute favourite was Professor Emily Simonoff from King’s College London.  Her talk was very engaging and all points backed up with reams of statistical evidence.  She mentioned frequently how important it was to separate each symptom from the ‘main condition’ e.g. Autism.  For example if you have an anxious child who is also on the Autistic spectrum, don’t just dismiss their anxiety as a part of their already known condition, but investigate what else could be causing this. 

Her talk went into very interesting aspects such as depressive anxiety could be linked to an over-focus on hostility.  If the pupil is becoming hostile towards you, then give them space! Don’t force them to interact with other pupils in their class. They will do this when their anxiety has dispersed, and then feel a greater sense of achievement when interaction is made. Points were then discussed on how cognitive behavioural therapy was excellent at helping anxiousness in young people, and has been proven to lower cortisol levels and reduce social anxiety, rather than rely on medication.

Temple Grandin is a celebrity for many reasons. She revolutionized the cattle industry with her cattle handling facility designs and insight into ‘thinking like the cows’.
Dr. Rona Tutt, OBE led the stream session that I then attended, who was such a lovely lady and Past President of the National Association of Head Teachers (NAHT).  She opened the session by telling us about Temple Grandin (see below) who you may have heard of before. Temple is a very famous lady who does have the label of ‘autistic’ but has challenged this at every turn, and written many books about how important it is to understand the world from someone’s perspective; labelled autistic or not.
Dr. Tutt explained to us how even when diagnosed with a condition such as Autism, the assessment of their individual circumstance should not end, as other co-occurring conditions could also be in existence.  As well as encouraging communication, we as Educators should also give them the space to work on their speciality.  So for example; if Pupil A hates doing homework, give him or her the space after completing a short piece of homework, to focus on what they love - if this be cooking, playing sports or computer games.  Associating this reward with work completed with help them progress onwards into adult life.

The one thing I will take away from this extremely thought-provoking conference, is to not take the ‘label’ as face-value.  Always be flexible, and always understand that each one of us is different, even if we have the same condition. It can be managed differently for each pupil, and by finding out which type of learning a pupil prefers, we can help them work towards their goals.
 
“Everyone is a genius. But if you judge a fish on its ability to climb a tree, it will live its whole life believing it is stupid”

-Einstein.

Elizabeth Jeffries
School Manager

Wednesday 23 October 2013

The work behind the InterHigh Weekends


Managing Events

Since I started working for InterHigh back in April 2012 I have been involved in two very successful annual events. The first of which was an activity break (InterHigh Weekend 2012) for the Students and their families to attend - this was quite an eye opener for me as I had only been working at InterHigh for approximately two weeks! Whilst at the event I discovered just how much time, effort and organising the occasions require, even for the most trivial of things. The second was a Hollywood themed ball (Interhigh Weekend 2013) which I had a lot more input with. We had approximately 120 students, family members and staff form InterHigh attend this event and we were all very pleased with the outcome of the ball and hope that everyone enjoyed.

Whilst organising the ball with Jacqui and the rest of head office staff I realised that I wanted to learn more about event management in the corporate sector. This led me on to searching for an online course in which I could still work full time as well as still continuing with my other commitments outside of work, but still gave me a good accreditation at the end of my studies. I came across the Fitzwilliam Institute Group, (www.fitzwilliaminstitutegroup.co.uk) who specialise in online courses ranging from Events Management to Internet and Web programming and many more. This particular course allows me to study at home and complete the course in my own time frame providing I finish the course within the allocated time of one year. The course is a series of assignments with a final course project, all of which can be sent to course tutors for marking before they are submitted for a final grade.

At the moment I am currently in the process of completing my first assignment on strategic planning. Wish me luck! I will keep you posted with my progress, in the meantime if you have any questions please let me know- natalie@interhigh.co.uk

Natalie Davies
School Administrator
 
 

Thursday 17 October 2013

Pathological Demand Disorder


My child’s tantrums weren’t  normal
When Morgan, my 7 year old son, is in his calm state he is ‘angelic’, calm, eloquent, charming and funny. But, we had serious concerns about him – his social behaviour, lack of interest in his peers, his approach to food – binging then eating nothing.  Yet during GP appointments he behaved perfectly.
No one believed my worries – I was in despair!
But, a break though came when during one consultation Morgan was in an anxious state. Morgan hit his little brother full in the face with a metal toy, kicked him in the stomach and when I tried to intervene he hit me several times all in front of the consultant.
It was so very sad to see my little boy acting like this, but it was also a huge relief.
It seemed at last someone had seen a glimpse of this ‘other side’ which was NOT a normal tantrum or normal battle of wills – it was suggested he had possible Pathological Demand Avoidance Syndrome (PDA), which can be managed.

Previously I had written a lengthy letter to the NHS detailing all the worries I had.  Then, finally a consultant actually witnessed Morgan’s worrying behaviour - and now Morgan is currently undergoing the diagnosis process for possible Pathological Demand Avoidance (PDA) or other Autistic Spectrum Disorder (ASD).
Doctors and consultants frequently comment that Morgan is engaging, exceptionally bright, funny and so on… yet he isn’t like this with his peers. He still plays alongside his peers rather than with, he has to play on ‘his terms’.

For  example, at his request I invited two friends over for a play date but when they arrived Morgan wanted them to watch him play on the computer. When they refused, the guests ended up playing together whilst Morgan stayed in his room unable to adapt or join in. Other areas of concern were: Morgan’s flapping of arms, standing on tip toes, fixation of numbers, anxiety and tantrums at being out of routine, very controlling – has to have things ‘his way’, inability to understand boundaries e.g. difference between being adult and child – he often sees himself in the supervisor role, policing other children and adults.
It worries me whilst at age 7 children tolerate this I am worried they will bully him in the future as he ‘tells tales’ and complains if they break the rules. 

He refers to his own sense of ‘oddness’ and is highly sensitive to sound and smell.  Morgan also has periods of eating almost nothing and then periods of consuming vast amounts of food. He has meltdowns if the wrong number bus arrives or if you say something will happen at 11am and you are not ready until 11.15!
It first seemed that because Morgan was so eloquent and clearly intelligent the doctors had no worries about him. At age 7 years and 5 months his reading age was 12 years and 9 months.
I was (and still am) worried  about the implications of his behaviours as he grows older and other children start to ‘see’ him as different – as a secondary school teacher  I have seen first-hand the damage that can be done by bullying

I don’t think ‘chasing’ a diagnosis is important. We don’t want to label Morgan with something but to create understanding.  We needed help so we could help him.

It was after the appointment when Morgan demonstrated violence that the consultant Paediatrician first suggested looking into Pathological Demand Avoidance Syndrome (PDA). I was advised to look on the National Autistic Society website as PDA is on there.
The consultant also advised Understanding Pathological Demand Avoidance Syndrome in Children: A Guide for Parents, Teachers and Other Professionals by Phil Christie (Available on Amazon and on KINDLE)

As I began to read this book it was like a million light bulbs going off inside my head. 
I wrote to the consultant who made these suggestions, thanking her and saying: “I do feel a sense of hope; and yesterday I felt almost a sense of freedom.  To think of all these times I have seen that little boy struggle and be left feeling so totally helpless and inadequate to help him.  Now at least there are strategies there to read about and look at, support is there to help him grow and be the person he can be… the sense of relief is enormous.”

PDA is recognised by the avoidance of demands made by others.

This avoidance is due to the child’s high anxiety levels. They feel that they are not in control. As I was reading it explained all the gaps that never made sense before.  It was all to do with Morgan’s general levels of anxiety – as these levels rose so his ability to cope diminished.  It explained why he was able to keep things under control at school and melt down in the evening, by bath time and bed time he was ‘full’ of all the day’s anxiety needed to sleep it off – and so by morning there was ‘Mr Nice’ again! 

The main characteristics of PDA are:

-          Resisting demands obsessively, appearing sociable to outsiders but with difficulties recognised by parents.

-          Excessive mood swings.

-          Comfortable (sometimes to an extreme extent) in role playing and acting.

-          Language delay in, delay speaking and/or vocabulary, seemingly as a result of disinterest

-          Obsessive behaviour.

-          Being super-sensitive.

What’s the future for Morgan?

Well, we have not been ‘stamped’ with a diagnosis and I am in no rush for that.  As I stated earlier I believe this would only really be helpful to provide understanding as Morgan gets older.
But, I’m still not sure about telling him he “has” something. How productive would that be?

The overwhelmingly positive thing about the book is that it has given me understanding – I see it making sense on a daily basis.  I can use the strategies in the book, and I can try and help Morgan as much as possible. 
I don’t always get it right and that’s for sure – having many of my own meltdowns! 

However, most importantly I can try to ‘manage’ his anxiety – realising the triggers, anticipating when he might be reaching maximum capacity, making those allowances and letting him decide on things when appropriate have all made a huge difference. 

Simple things from the book have been amazing… instead of:
 ‘Morgan can you clean your teeth please?’ = demand
‘Morgan, do you think now is a good time to clean your teeth? = a question
‘It is time to come and do your homework, perhaps?’
‘We are going to eat dinner now if you would like to join us?’
A very straightforward strategy is just leaving him alone more… like that moody teenager, he needs his own space, and he needs quiet time.
This sounds simple enough but just changing language around like this and making simple daily requests less of a ‘demand’ has made an enormous difference. But, because I have these strategies that work, dealing with Morgan is so much better.  

I can enjoy him again, and appreciate his charm and sweetness. 

Dos and Don’ts:

-          Do choose your battles, some things really don’t matter.

-          Do be prepared to change your plans.

-          Do think ahead! Train yourself to spot potential triggers.  I booked haircuts after a school disco, nightmare!  Morgan hates loud noise and was mega anxious when I collected him. I should have just cancelled the hair! Instead I persisted and a meltdown occurred.

-          Don’t feel guilty; the problems were not created by something you have done.

-          Don’t worry about what other people think.  You often get the ‘ooh, look at that naughty child’ stare – ignore it!

-          Don’t beat yourself up, everyone gets it wrong sometimes.

Most of all – enjoy the good times, take advantage of the more malleable days and talk to other adults with similar experiences. With understanding and support this and other ASD can be managed. Be aware there are those who think this is all ‘made-up’ - it’s bad parenting or too much modern ‘mollycoddling’.

Trust your instincts and find support, there is a wealth of information out there as well as parents all going through very similar experiences.

Jess Driscoll.

 InterHigh English Teacher

Sunday 13 October 2013

“What do your parents do?”



I have always feared this question, not because I am embarrassed or ashamed, but simply knowing that following my answer will begin a series of further questions and I am bound to spend the next ten minutes at least explaining the concept of an online high school!

Responses vary and sometimes consist of shock and amazement that such business could exist in a cowshed in my garden. Others show complete dissatisfaction and comment that no such school could have a social aspect or could provide a fulfilling education. Surprisingly, negative comments are in the minority even though humans don’t seem fond of change or the’ unnatural’. In spite of using the internet for more and more mundane tasks, going to school online is still seen as highly unusual in the UK. 

I was actually very hesitant of using this medium although I had grown up with it, knowing every single detail of it!  Now I know it from a student perspective.

 I have been to state school all my life until last year when deciding on my A level choices. My school did not offer the combination I wished to study; it was only now I would have the full experience of two very different schools. I spend 8:30 to 3:30 at my local sixth form within a comprehensive studying four subjects as is expected. Then two nights a week I undertake a history class with InterHigh. There are clear differences.

The main one for me was the lesson intensity. At sixth form we have 5 hours per a week for a subject, when you subtract the amount of time spent moving around the school, unpacking/ packing books, class distractions, and waiting for slow teachers to get on with some teaching, you are left with little time of full concentration. With InterHigh I only have 3 hours, however these are three pure hours of learning. The difference in quantity of content is staggering and quality is not compromised. I’m often left mentally drained after an hour and a half lesson. As for social impact I find the InterHigh community far more pleasant and the strength of their bond should not be underestimated. I have always felt accepted, even when I was younger and not actually a pupil of the school. The common bitter and wholesome nastiness found at my state school is not present at Interhigh. When entering a classroom there is often a stream of “Hello” and “How are you?” comments in the text box. I can never imagine this happening in my sixth form!

For me, Interhigh seems very natural. I have fond memories of my father, the principal, and I testing classroom software in the kitchen during the very early stages of InterHigh. To be honest InterHigh has grown as I have so it doesn’t seem at all strange to me. Family life to me is InterHigh. It has such a huge impact on my life I cannot imagine my home without it. 

Penelope Daniell Y12 History

Thursday 10 October 2013

Home Schooling


I have to admit that when the concept of InterHigh School was designed back in 2003/2004 the idea was not conceived specifically with Home Educators in mind. However, as soon as the school opened in 2005 many enquiries were received from the HE community. The online school tended to be of most interest to those whose children were now getting to the stage of possibly sitting formal public exams (GCSEs) and really needed extra resources to help them achieve this across a range of core subjects. In some cases it might be that a home educating family have several children and the task has become too overwhelming.  Two of the key attributes of the school from the onset have been flexibility and accessibility. Our Home Educators have been able to take advantage of this as the technology makes the learning in the classroom time much shorter, and the formal school day much more consolidated.

It was through the very positive feedback from Home Educators that we developed the Lesson Library. The continued growth and refinement of the Library has been crucial to maintain organised flexibility. A store of Schemes of Works, Lessons, Homeworks, Recordings, Videos and all sorts of Resources for a student’s stage in the curriculum is invaluable and we now offer InterHigh Library Cards (Library only places) to Home Educators.

Thankfully, InterHigh continues to attract HE families who require structured timetables and learning for core subjects, allowing much of the day for individual pursuits. A proportion of the HE students at InterHigh do require more support in their learning but the nature of the learning platform itself greatly assists here. Technology helps to provide consistency. Clear notifications and using graphic displays to help children monitor their own achievements are just some examples of this.

Interestingly, the exam pass rate for IGCSEs for HE students is extremely high, 80% A* to C.